Eat Happy!

Eat Happy!

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Sunday, September 23, 2012

Daddy's Tubbie-Helper

Helping daddy fill the tub.


YouTube Video

- Posted using BlogPress from my iPhone

Ian-Monkey having fun at Gymboree

Ian LOVES to climb!!

YouTube Video

- Posted using BlogPress from my iPhone

Language

I have a very brief update to throw in about Ian and his communication skills. We have been working a lot with Ian on sign language skills and pronunciation of sounds. Yesterday he started saying bubble. Other than the occasional Elmo, or his half-a-word for duck and dog, this is one of his first words. He was saying it again today at Gymboree. Most parents experience this earlier than we are, but it is very strange to start hearing your child telling you things, as opposed to the other way around.

We have also been working quite a bit with sign language. Ian signs “eat,” “drink,” “more,” “please,” “thank you.” We are working on “hurt.” He seems to pick up on them pretty quickly. He sometimes has trouble doing them without us asking if he needs something. Whenever we mention it or ask, he always does the signs.

We are very proud of him. He has an appointment with the school system in our county tomorrow about his speech and physical therapy delays. We will also being working with an awesome speech therapist at our clinic in November. With Ian attending preschool two days a week, going to Gymboree twice a week, and also taking swimming lessons, he is getting a lot of exposure to interactions he needs to learn.

Video Sample Retching Episodes for Ian

Here are two samples of a retching episode.  The first was a moderate one and I only caught about half of it.  The second is a long (5 minute) retching episode that happened early one morning....... hence the dark video.  Five minutes gives you a feel for how long they can last.  I cannot imagine trying to vomit so hard for five minutes continuously.  It is horrific.  Ian has had 42 of these since the 55 days after his last surgery.

We are always looking to manage these the best we can with foods, recipes, routines, medications, and TLC.  Unfortunately, since some of it is triggered by simply feeding through the G-tube, there isn't much else we can do except continue to get him to eat orally.  When you eat, the mind, stomach, and GI tract "prepare" with enzymes, hormones, and other bodily functions.  Feeding directly into the stomach, of course, does not do this........ and hence creates an unnatural scenario.




Ian's Favorite Things

Ian has been crazy about Sesame Street for quite a while now. He seems to enjoy watching the “Play with Me, Sesame” shows best. They are only 30 minutes and feature Bert, Ernie, Prairie Dawn, and Grover. Ian loves Bert and Ernie.

Play With Me Sesame

Ian has always loved books and reading. Right now he has a long time favorite, Sandra Boynton’s Snuggle Puppy. He also currently enjoys reading Duck and Goose, It’s Time For Christmas. I think he likes the animals and the textured, glittery pages.

           


Ian also loves the Gymbo puppet at Gymboree. When we sing his song and he comes out to play, Ian always goes looking for where he is hiding and loves when he comes out and gives kisses. Ian is such an attention hog and always wants to be next in line to get Gymbo kisses.

Gymbo

Ian’s Sesame Clubhouse and Building Characters from Sesame Place are some of his favorite toys right now. They happen to be birthday presents also. He enjoys his alphabet floor puzzles too.


Ian has enjoyed playing his ipad at doctors’ offices and while being in the hospital. He likes the letter and matching games best. he is learning coors, shapes, letters, and numbers. He has a few favorite apps that he plays. the scary part is he is able to unlock the screen, scroll to find his app he wants, and how to get through the prompts to pick his game. He cannot even say the game, but he knows what he wants!

Balloon School ipad app

Sea Matching ipad app

As always, Ian loves his spicy and crunchy foods when he does choose to eat. He likes the Goldfish crackers, MultiGrain Cheerios, and Spicy Nacho Doritos.


Ian continues to enjoy playing with his syringes and helping with his meds. Another of his favorite things is to run and grab things off the printer for me. As soon as he hears the printer, he stops, smiles, runs over, waits for the papers, and then runs them back over. It is adorable and makes me want to print things just to make him smile.